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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
About Lydia
Shortly after birth, Lydia was diagnosed with a rare liver disease called Biliary Atresia. This is when the bile duct is blocked or too small, causing bile to back up into the liver which causes psorosis of the liver. When she was 6 weeks old, she underwent a surgery called the Kasai procedure in which they removed her bile duct and attached her small intestine to her liver in its place. This was in hopes that her bile would be able to flow properly and her liver would function properly. As weeks and months passed after her Kasai, it became evident that there was already too much damage to her liver and she would eventually need a liver transplant. She is now 15 months old. She continues to show signs of psorosis of the liver with a variety of symtoms. One of her main struggles for several months was not being able to grow because of malabsorbtion of fats and proteins. She has been on IV nutrition for a couple of months and it has been helping a lot. She was stuck around 13lbs. for several months but is now up to 16 lbs. If she puts on a couple of more pounds, she will be big enough for the portion of my liver that they could transplant to her. She is a very sweet, precious baby. I call her my "sweet angel baby" and she is!
Lydia's family
Pictures
Lydia's liver friends and other blogs we follow
Blog Archive
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2010
(85)
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April
(37)
- Best Therapy Ever
- New PIC Line and Drain Tube
- Respirator is out and we can hold her
- Medicine Withdrawls
- Closer and Closer
- A Few Days With Lydia
- What's your favorite song Lydia?
- Consciousness
- Staying With Lydia
- More thoughts from Grandma Peterson
- Holding Even
- Hoping for Healing
- All Sewn Up
- Lungs Are Getting Better
- Better Day
- Janene On the Mend
- Rough Day
- Less water is sometimes a good thing
- She Openned Her Eyes
- Better At Home
- Janene is Going Home
- Day 5 Post Transplant
- 4th day post transplant
- Post Transplant day 3 Part 2
- Grandma and Grandpa's Visit to Primary Children's ...
- Third day post transplant
- Thoughts from Grandma
- Day Three Part 2
- Day Three
- Day Two
- Transplant Day Part 4
- Transplant Day Part 3
- Transplant Day Part 2
- Transplant Day
- repaired again
- a favorite toy
- I took Lydia in for another central line repair ye...
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April
(37)
love her.
ReplyDeletexoxo
lizzie
You are in our prayers. Good luck tomorrow! I hope all goes well and you can all get home soon!
ReplyDeleteI just heard about your transplant coming up tomorrow and I wanted to swing by and wish you many prayers for your upcoming journey. Prayers for as smooth sugery and for speedy recoveries. Soon BA will be a thing of the past.
ReplyDeleteBlair & Xander
I wanted to introduce myself quickly. My name is Kayli and I found your blog through Lizzie. My daughter Belle who will be a year on April 15 has Alpha-1. We haven't had a transplant yet but it is in our near future. I just want you to know that my prayers are with both of you tomorrow as you both go through your surgeries. As you know you are in the best of care and I hope you both recover very quickly.
ReplyDeleteKayli Cragun