Lydia's day wasn't so good. She had to get a PIC line this morning, which was good and needed for her future feedings at home and medicine now, but it is just another procedure that makes it hard on her. Her x-ray this morning showed that she had a pocket of fluid back where it was before under her right lung. When they put the PIC line in they also put a drain in her side again. They have sucked out about a pop can of fluid. Hopefully that will help her lung have room to breath. She has had major withdrawals. They have been trying to get her off of morphine by using another medicine. It is not doing the trick so they are having to give her some more morphine every once in a while when she is uncomfortable.
She has been breathing really fast since they took her off of the ventilator. She hasn't had much rest because of the labored breathing. She has been sleeping a lot today to make up for that. I hope she sleeps through the night with how much sleep she has had the rest of the day.
Janene didn't get to hold her because Lydia was uncomfortable last night and all today. She went home tonight to get some sleep. We will be trading here and there so that we can be with her as much as we can but still balance the needs of the kids at home. So many people have been helping us to make this possible. Thank you all.
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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
I hope that this is two steps forward and just a small step back for Lydia and her new PIC line. I am amazed at the strength of your family and all of the sacrifices each of you are making, including the kids. It will be great to have you all back as one big, happy family again. Wish we could do more to help, but we continue to have you in our thoughts and prayers. Love, Dee & Twila
ReplyDeleteIn between the good days it seems Lydia still has her rough ones. I am so sorry it was hard on her. How is work going, Brian? I hope you are able to still get things done amidst taking care of your little girl. Who is all helping with your kids at home? I am thankful to them too! It makes me so happy when I hear that you and Janene are both able to visit Lydia together. We will continue to pray each day. As I was reading my scriptures this morning, I thought of your family as I came across this verse--Moroni 7:42 "Wherefore, if a man have faith he must needs have hope; for without faith there cannot be any hope."
ReplyDeleteI love that because Faith and hope go hand in hand just as you are showing all of us.