It was such a blessing to be with Lydia the past 24 hours. She looks so much better to me. What a difference than less than a week ago when we saw her last. Her color is much better, and her bruises have faded a lot. She was even more alert, and she radiates a spirit that is angelic. I love her sweet smile! I really was blessed just being with her. She was so good. After Janene left in the afternoon yesterday, Lydia played and was happy all evening. I thought she was tired because she seemed sleepy, yet she kept going until after 10:00pm. It was just fun having a one on one night with her. Today was a busy one for her. I can't believe how well she accepts all that is happening to her. I guess she has learned she has to accept doctors, nurses, lab techs, therapists, radiologists, etc. etc. etc., because for the most part she let them do what ever without a word of complaint and then when they said goodbye, she would sweetly wave good bye to them. In every case it would elicit a big "ohh" from all the hospital personel. She has truly won everyone's hearts. She saw many doctors, nurses, and specialistst today. They needed another blood culture which meant two pokes. She cried while they did it but was smiling again once they were through. The poor tyke has no more good veins to poke it seems. The sad thing for me is to watch Lydia cry. You can't hear her cry, or laugh for that matter, because she still doesn't make any sounds when she laughs or cries becasue of being intubated for so long in the PICU, but you know she is crying all the same. They also did a swallow study on her today. They wanted to see if when she swallows, it is going down the right tube and not into her lungs. Unfortuately, they found that she is aspirating the fluids when swallowed or in other words it is going down the wrong pipe. This means that over time she will have to trian her body to eat and drink correctly. Right now it means no more ice chips which is really sad for Lydia becasue she "luuves" ice chips.
One of the sweetest moments today was when she got her stitches out. She was a real trooper, and again won the heart of the resident who took them out. Some of the stitches were in pretty deep and he really had to tug and pull to get them out, but she didn't cry, she just made little grunting moans and tried to kick his hand away. The doctor kept saying how sweet she was how impressed he was that she was being so good. Then when he was leaving, that little wave really got him.
I got to hold her on my lap and snuggle her and I sang her a funny song it made her laugh. It was heaven. I have a book that is called "What is Heaven?" I read it to her and I couldn't agree more, Heaven is just having you, Lydia. I love you little "Angel baby"! Grandma Peterson
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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
Did you tell her the story about Herbert, the elephant. I used to love hearing you tell that to me when I was little. Make sure you tell it to her...and to all of the grandchildren, for that matter. What silly song did you sing to her? I'm so glad you got to spend the day with her. She sounds like the sweetest thing ever.
ReplyDeleteI loved your comments. Thank you for sharing and for being such a wonderful Grandma. I understand what you are saying because I cherish the times I had alone with my Grandson (in the NICU). Every day I had the 5:00 PM feeding. It brings such a closeness. I'm so happy that Lydia's doing better. Thanks again!
ReplyDeleteIt is so wonderful reading these positive comments. I know what a joy it must be to see Lydia be somewhat herself once again. She has come such a long long way. Thank you Lord. Prayers and fastings and blessings are certainly being manifested through the little Angelic Lydia. My prayers are still with you Janene, Brian and her siblings. Thank you Grandma Peterson for sharing your experience with us today. I look forward to every day reading Lydia's Liver Story. I just love looking at her pictures also. Thanks to all of you for keeping us updated so we can share the love you give to us. I LOVE YOU ALL. Aunt Drew
ReplyDeleteYou are a wonderful mother and grandmother. Lydia is so lucky to have you and Linda as her sweet grandmothers. :)
ReplyDeleteMom, you expressed beautifully how I feel when I'm with her. Thank you for being such a wonderful grandma to her and all my kiddos. Thanks for taking this time with her so Brian and I and the other kiddos could have the evening together. We all love you!
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