She was supposed to come home today. That didn't happen. She got another phantom fever again last night. So, they took cultures again. This mean that they need the cultures to grow for two days. So most likely we will be there another few days.
I got a call when I got home. She might be able to come home tomorrow even though we won't know the results of the cultures. I called the transplant coordinator this afternoon to do some more questioning. We really feel that this phantom fever that comes every once and a while will never be found. I asked a lot of questions trying to get some more reasoning of why she can't come home. If she has to go back she has to go back. That won't hurt us any. We feel that she might heal better at home, and that our sanity will come back.
She is going to come home on 18 medicines. The drug lady said that might be a record. Six of them are blood pressure medicines. Many of the drugs she will be able to get off of after a little while. I know that 18 medicines sounds like that is the reason to keep her, but she really is doing good and getting stronger and stronger each day. We feel she could do it faster at home. She sits up in her crib to play now, and is tolerating being held better.
We hope that tomorrow will be the day but every time they say we can leave it never seems to happen, so we will see.
Subscribe to:
Post Comments (Atom)
chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
Prayers that tomorrow is her day. Hospital life is no fun and you have definitely had enough of it.
ReplyDeleteWow 18 meds. That's is a lot, but all the work is worth it to have her healthy and at home.
Erica
So sorry, but we want her to come home when the sun is out and shining so bright, not on a cold, dark gloomy day. So lets hope for Thurs. or Friday when it will be a great day to remember!
ReplyDeleteKerin
Brian,
ReplyDeleteI sure hope Lydia can come home on a sunny day too. All of this long waiting and I know you want the hospital part to be over with. I can't imagine how hard this must have been to be there so very long at Primary's. I can't wait for you to take Lyds home and be in your own surroundings. I also think it will do a world of good to help heal her.
oh that ITCH to go home...it will feel like the sweetest return ever. as hard as your home care will be for a bit, it's nothing because of your great appreciation to be HOME sweet, sweet home. you guys are great. HANG in there just a tad bit longer. lots of love to you!! lizzie
ReplyDeleteAll good things come to those who wait. I know how tiring a long term hospital stay can be, but it will happen and that will be a joyous day for all. Hang in there.
ReplyDelete