Thursday, June 24, 2010

Happy girl

We took Lydia to see her grandpa's on Father's Day.  She really loves both of her grandpa's a lot.  She loves them to hold her and play with her.  I love to watch them interact with her.  She has mostly been homebound because of her immunosuppression, but we felt she was pretty safe on Sun. because one get-together was outside and there were no extra people at the other grandpa's.  In a couple of weeks she will be 3 months post-transplant which means we will be past our insurance transplant max so we won't have to worry so much about money if she gets hospitalized.  If she continues to do well, they will start weaning her immunosuppression meds about then also so we will feel somewhat safer taking her around others. 
We had another successful G.I. visit on Mon.  She cried less at her blood draw than in the previous weeks.  The phlebotomists were able to get the blood they needed in two pokes instead of three.  Dr. Book and the team were happy with how she is doing.  They needed to adjust her Prograf (anti-rejection med)  because that level was high.  They also changed her feeding schedule to try to get her hungry more so she will want to start drinking more than water and eventually learn to eat food.  It's been nice to have her disconnected from her food pack for chunks of time during the day so she can scoot around easier.  She is getting around faster and get frustrated when her food pack limits her range of motion.  She has been getting up on her hands and knees occasionally this week.  It is so exciting to see her get stronger and progress.
 I took her to Davis hospital last week to get her blood drawn.  I was nervous for this because we previously haven't had good experiences with blood labs other than PCMC for Lydia.  It went great though.  The phlebotomist was able to get all the blood with the first poke.  I will continue to take her there on the in-between weeks when she doesn't have an appointment down at PCMC.  This will be a big help to not have to go to S.L.C. each time.
It's been great to have the older kids home!  They have been great helplers with Lydia and other things.  Alyssa cleaned out the fridge for me the other day.  She volunteered to take Lydia on a walk this morning.  She seems happier to have a sister that she can play with and interact with more.  Spencer and Dallin also love to play with her and Lydia loves playing with all of them.

3 comments:

  1. Janene,
    Wonderful post! Wow, so much keeps getting better and better with Lydia. It was great to hear you guys were able to go visit the Grandparents on Father's Day. How nice!
    It is amazing to me how she is progressing. I guess I didn't realize Lyds will need to learn to eat again and learn to walk...but it all makes sense. I am thankful things went well at Davis for you.
    I am just laughing at the picture with all the kids in the fridge! I just cleaned out mine last week and Isaac crawled in there and I shooed him right out...but you are so good to stop and actally take a picture! You're the best Mom, Janene! And Alyssa is such a great girl...wow--I can't believe she cleaned out the fridge...one of MY least favorite chores!
    You have such a wonderful family. I hope Brian is doing good too. And I hope you're feeling well also. Ok..this was a rather long comment!
    Love ya

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  2. Can't help but smile as I read this!! God has truly blessed your sweet family!!
    Much love to you all!
    Lacey & Chad Williams (and family)

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  3. Just getting caught up w/your precious little girl, and I am thrilled that she is doing sooo well!!!! Praises going up and prayers continuing for you all :)

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chillin' and grubbin'

Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)