Our friend Nancy (home healthcare nurse) came and pulled Lydia's pic-line today (under Dr. Books orders, of coarse). Lydia's anti-rejection meds have been stable enough to move to once a week labs instead of twice a week. As much as I hate having her get poked for blood draws, I hate having her in the hospital for infection worse. The pic-line is a source for risk of infection so we are happy it's gone, especially now that we have been out of the hospital for three full weeks tomorrow. Lydia will also be glad to get to put her arm down into the bath water. As soon as her incision wound is healed enough, she will be able to have a full-blown fun, splashy bath. Her voice is getting much stronger and her oxygen levels have been much better so hopefully this means her lungs are continuing to heal. She will have another swallow study test next week to see if she doesn't aspirate any more. We have gotten several good blood pressures so the doctors have started to wean two of the blood pressure meds. She seems to be doing great!
Spencer, Alyssa and Dallin have their last day of school tomorrow. Me, Parker and Lydia will really enjoy having them home for the summer. It will be more people for Parker and Lydia to play with, more help for me and less worrying about germs brought home from school (another big source for possible infection). Welcome summer!!
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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
Lydia!! Good Job!! We are so happy life is turning back to normal!! You are amazing! Have a wonderful summer! You deserve it! (We hope to see you at least once?!?)
ReplyDeleteShannon
Hooray for no more PICC line. I can't wait to see pictures of her splashing in the tub.
ReplyDeleteI am so glad your life is starting to get back to normal and we hope to see you soon.
Good news! we are happy to hear about the continued improvements of Lydia's health. This has been a long slow healing process but each little step of improvement brings you all closer to finally having a little girl free of quite as many health concerns as she has had to this point in her life. So happy for you all.
ReplyDeleteGreat news, Janene! I am so happy Lydia is getting better and better all the time. I guess I didn't realize she couldn't take a bath yet---so I'm sure that will be SO nice when she can.
ReplyDeleteHow wonderful to hear you be so excited to have all of your kids home for summer. I love that. You have such a great outlook on everything. lots of love...