Lydia's Liver Story

Lydia is continuing to do great!  She had a swallow test last week to see if she was still aspirating into her lungs.  She passed with flying colors.  Yeah!!  She is now free to have all the water that she wants.  We will start having early intervention come to teach her how to eat.  Her GI clinic visits are now every two weeks instead of every week. 

She gave us a little scare last week.  Brian was supporting her back as she was standing up to the coffee table.  Her legs gave way suddenly and she fell with one leg bent underneath her.  She cried hard for a while and woke up a couple of times in the night crying with pain.  In the morning, she cried if her leg was moved a certain way.  I was afraid she broke it or dislocated her hip.  I took her to get x-rays.  Gratefully it wasn't broken and has continued to get better over the past few days. 

Lydia loves to play with the kids, take walks in the stroller outside, watch the kids play outside, play in the tub and scoot around the house on her bum.  One day the kids were pulling her around the trampoline on a blanket.  She loved it and the have since pulled her around the house on a blanket.  She laughs and smiles almost all the time.  We're so happy that she is feeling so much better and that she is so happy.