It's not often that you find a child who doesn't want to go home from the hospital, but that was the case with Lydia this weekend.
Lydia's liver numbers were really high again in her lab results last week. Dr. Book wanted to do another biopsy. My mom and I took her down Friday morning. She was happy and excited to go from the time we got in the car early in the morning. On the drive down, she voluntarily told me she wouldn't cry for her labs and she didn't (at least not the morning labs). She was happy to play with the toys in the registration office, the lab, the ultrasound area and in her room. She enjoyed playing games, coloring, watching shows, and eating orange popcicles. Brian came down to stay with her Friday night because I had a primary activity in the morning. When her results came back on Saturday that it was very light rejection and she could go home, she unhappily told Brian that she didn't want to go home. Dr. Book increased her steroids to treat the rejection. When I talked to her on the phone and cheered that she was coming home, she whined that she did not want to go home. She had too much fun in her home-away-from-home with lots of personal attention from grandma, nurses and parents. Brian and I got some good laughs out of this.
Lydia's liver numbers were really high again in her lab results last week. Dr. Book wanted to do another biopsy. My mom and I took her down Friday morning. She was happy and excited to go from the time we got in the car early in the morning. On the drive down, she voluntarily told me she wouldn't cry for her labs and she didn't (at least not the morning labs). She was happy to play with the toys in the registration office, the lab, the ultrasound area and in her room. She enjoyed playing games, coloring, watching shows, and eating orange popcicles. Brian came down to stay with her Friday night because I had a primary activity in the morning. When her results came back on Saturday that it was very light rejection and she could go home, she unhappily told Brian that she didn't want to go home. Dr. Book increased her steroids to treat the rejection. When I talked to her on the phone and cheered that she was coming home, she whined that she did not want to go home. She had too much fun in her home-away-from-home with lots of personal attention from grandma, nurses and parents. Brian and I got some good laughs out of this. 
Hoping the rejection stays under-control and she stays happy and healthy!! She is such a happy beautiful little girl- I am glad she wasn't scared or upset about being the hospital again! Such a brave little one!
ReplyDeleteWho would want to go home with all that attention? Glad it wasn't serious rejection.
ReplyDeleteWhat a fun suprise to see a new post during my blog browsing. Oh my that Lydia has grown!!! She is darling and brave and wonderful. Hope you and Brian are doing well, Happy New Year!
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