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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
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chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
chillin' and grubbin'
Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out)
About Lydia
Shortly after birth, Lydia was diagnosed with a rare liver disease called Biliary Atresia. This is when the bile duct is blocked or too small, causing bile to back up into the liver which causes psorosis of the liver. When she was 6 weeks old, she underwent a surgery called the Kasai procedure in which they removed her bile duct and attached her small intestine to her liver in its place. This was in hopes that her bile would be able to flow properly and her liver would function properly. As weeks and months passed after her Kasai, it became evident that there was already too much damage to her liver and she would eventually need a liver transplant. She is now 15 months old. She continues to show signs of psorosis of the liver with a variety of symtoms. One of her main struggles for several months was not being able to grow because of malabsorbtion of fats and proteins. She has been on IV nutrition for a couple of months and it has been helping a lot. She was stuck around 13lbs. for several months but is now up to 16 lbs. If she puts on a couple of more pounds, she will be big enough for the portion of my liver that they could transplant to her. She is a very sweet, precious baby. I call her my "sweet angel baby" and she is!
Lydia's family
I am glad to see you have joined the blogging world. Your children are beautiful. Lydia made the cutest faces in those photos. I am so glad to hear London got her new liver, and I hope you are able to join us on the other side of transplant soon.
ReplyDeleteErica
Hi there! I am a friend of Lulu's, I also follow her blog. I live in Liberty, some of your relatives are in my ward. Good to see you in the blogging world... I hope the best for your little one!
ReplyDeleteApril Rice
It's great to meet one of the other "Sisters of the Transplanting Livers" ;). Lizzie is my sister. She and I were all disqualified as living donors so I'm happy for you that you are a good match for your little girl. Best of luck to Lydia and the rest of your family!
ReplyDeleteIt is so great to be able to read the blog! We love you and are praying for all of you. It is encouraging to read all her BFF's blogs! love ya!
ReplyDeleteJanene...it's so good to see your face and your beautiful family's pictures. They are all growing up so much. Great photography. We pray for Lydia and those taking care of her. I am glad you have some friends supporting you that have walked in your shoes. Best wishes with all that is going on in your lives. We love you and miss you.
ReplyDelete